These are quotes from doctors to patients showing just how important communication is.
My doctor told me one point, "Nikhil, there's nothing we can do for you." Fair enough, if it were true. But she went on. "Not only is there nothing we can do... there's nothing that we ever will be able to do. No research will ever be done on this. You'll have this forever."
That was without referring me to a rheumatologist, a second neurologist, an immunologist or a psychiatrist. That was when I was already suicidal due to the pain. She made me really suicidal and almost pushed me over the edge.
But after a while... I said "screw you." I used my knowledge as a med student (and my access to medical journals via uni) went ahead and looked at every single option for every single disease similar to the undiagnosed issue that plagues me. I found 50 different options I did have, changed doctors, and now not only am able to ignore my pain and thrive despite it ( nikhilautar.com/ignorechronicpain ) for exactly how I did that; using evidence based psychological and neurobiological to do so), but have also found a few drugs that work. One i'm on right now is actually making a big difference!!! Words can #makeorbreak
you though. When I was depressed, even I, someone who found something to smile about 10 MINUTES after being told I relapsed and that palliative care might be my best option, couldn't beat that back. To the #doctors
out there reading this in particular, please think about how you say things. They can make a huge impact. #chronicillness
, as my fellow #spoonies
know, can drain you and bring down even the #strongest
But words can also make you. I asked hundreds of patients what the best and worst things they've ever been told by a doctor was... and the difference some doctors have made just by showing #kindness
is HUGE too! Check out the full album at https://m.facebook.com/musingsofamedstudentpatient/photos/?tab=album&album_id=1110212122464840
Read what it feels like to suffer from chronic illness nikhilautar.com/thespoontheory
#chronicillness #spoontheory #depression #pain