#autoimmunedisease

858,304 posts

It doesn’t feel inspirational. It’s not about growing strength or building character. It’s not coping through positivity. The reality is that having a chronic illness is hard. It dictates every aspect of your life. Being positive just simply isn’t always an option. Remaining hopeful can feel impossible. Symptoms change your life and influence your mental health. Living with chronic illness isn’t easy. In fact, it’s damn hard. ⠀ ⠀ [Image description: a wooden plank goes out into a body of water. Over it the words: ‘Having a chronic illness is hard.’]⠀ ⠀ #spoonie #spoonielife #chronicillness #illness #invisibleillness #chronicfatiguesyndrome #cfsme #cfs #mecfs #ibs #gravesdisease #autoimmunedisease #thyroid #fibromyalgia #fibro #menieresdisease #hidradenitis #vertigo #fatigue #migraine #chronicpain #tinnitus #pots #lymedisease #lupus #eds #anxiety #mentalhealth #depression #awareness
We don’t look ill because it’s an invisible autoimmune disease and people just don’t think or realise this... we are forever proving to people that we are constantly ill with this disease. Whether we are flaring, our disease is becoming stable and controlled or we are in remission with this disease... we are still ill as unfortunately this disease is cured and we are forever raising money for research in the hope that one day we will be cured from this disease. There is a difference between an illness that is visible and an illness that isn’t. If only people could see our illness on the outside like what it is doing on the inside. Crohn’s and Colitis or both can be horrible to see. We are chronically ill because it is a chronic illness and always will be! 💜💜 #chronicillness #spoonies #ibd #invisibledisability #ibdawareness #crohnsdisease #ulcerativecolitis #whydontyoulookillthen #chronic #chronicallyill #autoimmunedisease #invisibleillness #nocure #illness #hopetofindacure #proving #crohnsandcolitisuk #quote
🇬🇧 Tidying up 🙏 . Maybe it is Spring cleaning fever, maybe it is Decluttering and Mind Decluttering 😉 But I am having a bit of a Tidying fever ! ! ! . Honestly the after feeling is like the one after running, Except that this one last, as it is one time effort and just maintenance 💪 . . Do you like tidying up? Would you get someone to help you tidying up? . . . 🇫🇷 Rangement 🙏 . Peut-être que c'est la Fièvre du Nettoyage de Printemps, Peut-être c'est le Désencombrement et le Desencombrement mentale. Mais j'ai un peu la fièvre de rangement en ce moment! ! ! . Honnêtement, le sentiment d'après est semblable à celui après avoir couru, Sauf que celui-ci dur, puisqu'il s'agit d'un effort unique et de maintenance. . . Aimez-vous ranger? Souhaitez-vous que quelqu'un vous aide à ranger? . . . #mallorca #fit #guidance #life #meditation #wisdom #soul #declutter #calm #mariekondo #love #modeling #strong #health #healthychoice #wellnesstips #motivation #lifelessons #konmari #perception #lifecoach #guidelines #lovewillsavetheworld #makingahouseahome #makeover #healthcoach #shooting #model #autoimmunedisease #strongnotskinny
Had kind of a rough day. Got into my doctor for a steroid injection to try to get this wicked flare under control and got a speech about my depression. Then had a bad reaction to the steroid and felt like absolute crap and had insane muscle spasms in my jaw. Then I had to pick up the girls from school, then run a bunch of errands, and the girls were behaving terribly. Its finally time to lay down and rest before I have to get up in the morning and take the girls to school. Hopefully by then the side effects will have subsided and the steroid will be starting to help. Oh and I have to start keeping a pain journal to detail my pain all day every day now. Should be fun. And time consuming. #Superhero #ASWarrior #Spoonie #Anxiety #depression #pain #toughasdiamonds #badass #strongerthanmyself #nevergivingup #painpatient #princesspowerful #chronicillness #chronicpain #autoimmunedisease #ankylosingspondylitis #kissme #kissmegoodnight #nomakeupon #nofilter #noedits #balloontheory #ASsucks #invisibleillness #invisiblebattle
More than. 💗✨ Storytelling heals. Never be afraid to tell yours.
There's days and then there's days where you're in a daze😷. Gonna kick this outta here with all the right meds and some take out Asian beef and veggie soup🍜🥡🥢 #nocookingtonight #autoimmunedisease #feelingbetteralready #allthesymptomswithnonofthediagnosis #wtfisgoingonwithmybody 🤷 #hashimotossucks
When all else fails: push throttle. . . I get sad when my kids go to the arcade or on rides because those are the kinds of things I would LOVE to do with them but I get vertigo, or at the very least motion sickness, super easily. Once vertigo starts I am done for so I can't risk it, especially if I have to drive. So when my boys say "Mom! Look at this!" (which is everyday) I often times can't look for more than a second. I wish I could play video games with them but old school 2D Mario is all I can handle on a good day and only for 5 minutes. That used to depress me but now I try and twist it and think of all the things I still CAN do with them: movies, the park, hiking, road trips if I drive, picnics and so much more. There are plenty of reasons for me to be grateful. . . . #vertigo #menieresdisease #videogames #arcade #parenting #chronicillness #motionsickness #grateful #vestibularmigraine #basilarmigraines #dizziness #attitudeofgratitude #gratitude #mindfulness #positivethinking #fibromyalgia #autoimmunedisease #hashimotosdisease
🛌🛌🛌Bedtime blood glucose. I prefer to go to bed with it at around 90-100, I'm always scared I'll drop too low at night and not wake up before one of my set alarms goes off. 😐 (I wake up at 12pm and 2am to check my blood glucose every night{or at least I try to} and I go to bed at 10:30 and wake up at 6am most days). Ignore the time on the monitor it's off. #bloodglucose #bloodsugar #diabadass #diabetesmanagement #diabeticburnout #cute #kawaii #t1dlookslikeme #t1dawareness #t1diabetes #t1d #chronicillness #autoimmunedisease #mentalhealthawareness #depression
All weekend there were tons of 🦓 butterflies flying around my house. They've been around lately but there were so many this time I kept telling myself there had to be some hidden meaning behind it. I now realize what.🦋🙏 I started thinking about zebras being "rare" and how it was interesting that these butterflies seemed to really be sticking together. If "danger" (a dog-walker) came by, they'd move together. It all seemed so trusting, so loyal... Man! This really is rare! It seems the qualities that these 🦓🦋s have are those of a dying breed in humans these days. The term "friend" is just thrown out there. It's a funny thing when you're diagnosed with chronic illness, it's almost like people think they're going to catch something from you. They're all supportive on your social media but God forbid they actually show up in real life. If we aren't hanging out anymore in person, I don't need the "support" on sm either ✋ It's actually kind of nice, it's like a free bull💩 meter 😂😂 So I've said it before and I'll say it again. To "normal" people 🦓 rare means sick, unfortunate, blah blah blah... But to me - I'm just fine with rare. To me rare means loyal, compassionate and trustworthy 🤷‍♀️🤷‍♀️ I'll take that over normal any day 👌🦋✊🦓💜🎗️💙 . . . . . . . . #EmPOWERthePATIENTS #loyaltyisroyalty #raredisease #dreambigbeunique #spoonie #awarenesscollectionbylynda #warrior #lupuswarrior #pots #spoonies #autoimmunedisease #chronicillness #chronicallyill #invisibleillness #disability #invisibledisability #anxiety #mentalhealth #friendship #support #healthiswealth #butyoudontlooksick #itsoktonotbeok #autoimmune #awareness #brainfog #nonprofit #fibromyalgia #hypothyroidism #hashimotos
I feel so much GRATITUDE for this community❤️I think we often wait too long to express our gratitude, and I want to make sure you know how much I appreciate you & our little online space. .⁣⠀ Recently our email subscriber and insta communities hit some big milestones. It is through all of YOU that I get my inspiration every single day✨⁣⠀ .⁣⠀ Don't wait to express your gratitude - Tag a friend you are grateful for in the comments ⬇️⁣⠀ I'm tagging @_naturallynu_ @celiacdietition @glutenfreeglobetrotter @christieathome @getawayglutenfree @endlessdistances
Many of us are aware of how important it is for our well-being to have a healthy gut, which depends mainly on healthy gut microbiota. In fact, few things can disturb our daily routines, social events or even travel experiences, pain and embarrassment of a malfunctioning intestinal system. Researchers are discovering and recognizing that the other organ systems are influenced by the gut microbes, and these links are gaining attention as possible factors in a number of diseases, such as depression and lung disease. We may just be beginning to discover the ways in which a healthy or unhealthy gut can impact our lives, but we already know a lot about the gut bacteria, that is about how they impact our immune system. 1.Bacteria teach immune system how to behave and interact 2.Bacteria educates our immune system from the day we are born 3.Bad bacteria can lead to number of diseases 4.A diverse gut flora is healthiest for overall body‘s functioning 5.Gut bacteria maintain a healthy immune system Know the game of how the gut bacteria works and look after it. #bengaluru #guthealth #gutinstinct #happygut #cleaneating #detox #wellness #autoimmunedisease #cleaneats #microbiome #immunity #healthybacteria #immunesupport #immunesystem #gutflora #stayhealthy #guthealthmatters #healyourgut #plantbased #eathealthy #trustyourgut #mentalhealth #lowfodmap #bangalore #guthealing #gutmicrobiome #loveyourgut #probiotics #probiotic #bonfartokefir #
load more posts