It’s been a very stressful and scary 3 weeks! I quickly became weak in my hind legs and struggled to walk. I was rushed to the ER and was told that I needed to see a neurologist ASAP and there are no pet neurologist in Hawaii. I flew to the mainland and met with a neurologist and had an MRI. I was diagnosed with a congenital malformation in my spine called Hemivertebrae that was making me progressively paralyzed :( the doctor said it was too severe for surgery. I am now back on the island and am practicing physical therapy and other alternatives! I am a happy loving pup and still have so much more love to give 💕 plz donate for my treatment- anything will help!!! Link in bio.
T H E . O P E R A T I O N - P A R T . O N E
The human spine is basically made up of rectangular building blocks (vertibrae) which all stack up on top of each other, to create a straight structure. The way Oscar's spine had developed in utero meant that some of these rectangular blocks had grown unevenly on one side, and were now triangular. Hence creating a curve to one side. These vertebrae are referred to as hemivertabrae as they are only half developed.
The day before his surgery Oscar had to have an MRI and a CT scan. The surgeon had decided he was going to operate on the top curve first, by removing three of the hemivertabrae to see if it would encourage growth on the inside of the curve. The operation would be very tricky as he had to remove them around the delicate spinal cord. If the spinal cord were to be damaged, Oscar could end up paralysed. Therefore the MRI and CT scans were imperitive to both the spinal and neuro surgeons, as one tiny mistake could change Oscar's life forever. We were told there was a 90% chance that everything would be ok, but it's amazing how huge 10% seems when you're putting your child's life in the hands of a practical stranger.
Oscar was an absolute superstar throughout both scans. The MRI was incredibly noisy, and rather long, but he was given earphones and there was a mirror inside the scanner so he could watch a movie whilst it was being done! After the scans, he had to have a blood test in case he needed a transfusion after surgery - with this kind of surgery you can lose a lot of blood. Oscar is terrified of needles and it took a lot of gentle coaxing and an iPad before the doctors got what they needed!
So then he was set! The operation was to take place the next morning. We headed off to our hospital accommodation for the night, but none of us got much sleep...
#spine #vertabrae #hemivertabrae #surgery #mri #ct #bloodtest #superhero
During his stay in Bristol, Oscar had numerous tests and visits from lots of different consultants. We found out that his scoliosis had caused his rib cage to form abnormally, creating very little chest capacity on his left side. As such, his heart had been shunted across into the right side of his chest. This then gave his left lung a little more space, although it was only actually half the size it should have been. He underwent tests on his kidneys too but thankfully these came back clear.
This photo looks quite scary, but for those in the know he was just about to have an ECG where they monitored his heart. This came back normal too which was another small victory for us!
We discovered during our stay that my poorly managed gestational diabetes had been the reason he'd been so poorly when he was born. His blood sugars were very low and he wasn't managed properly at the hospital where he was born. I was told late on in my pregnancy that I had GD, but that there was nothing to worry about and that I should just carry on as normal. In my two subsequent pregnancies I ended up on insulin which makes me quite sick now thinking back to what could have happened to Oscar.
Finally the day came for Oscar to have surgery to fix his inguinal hernia. I was an utter mess when they took him away, and was convinced I'd never see him again. They were concerned how he'd cope under a general anaesthetic given that he only had the equivalent of one and a half lungs. But being the little fighter he was, he came through the surgery with no complications and we returned to his bedside to find him sleeping with a tummy full of milk!
Two days later we were finally able to take him home. It was a week before my birthday and was the best present I could have wished for. It was only when home that the trauma of the past 11 days properly hit me. I realised then that Oscar's birth was only the tip of a very scary iceberg.
#scoliosis #dextracardia #hemivertabrae #ecg #gestationaldiabetes #surgery #scbu #scbubaby #goinghome
Matthew and I were not expecting to be adding to our family since we have such a full house, but life is full of unexpected changes.
We were given the opportunity to change this baby girl’s life. After much consideration, we decided to bring her into our family. After spending this weekend with her and caring for her, we realize just how blessed we are to care for such a sweetheart.
She was scheduled to be euthanized this past Friday. Instead, that was the first day of the rest of her life.
She has multiple spinal issues, including scoliosis, hemi-vertebrae, and Spina Bifida. With these issues, she does not have control of her bladder or bowel movements. Otherwise she is just like any other kitten— playful, silly, and cuddly.
We don’t know how long she has left on this earth, and how exactly her condition will progress, but we’re determined to make her life the best. She is truly special—it won’t be easy, but it’ll be worth it.
Welcome Home Whoopsie ❤️ #whoopsie #manx #manxcat #manxsyndrome #pampers #diaper #specialneedscat #kitten #spinabifida #scoliosis #hemivertabrae #meow #catparents #catmom #catdad #kittiesofinstagram #adoptdontshop #itsagirl #welcomehome #baby #calico #cat #kitty #purrfect #kittensofinstagram #catinadiaper
Day 3 and 4
So sorry I didnt do a blog yesterday, by the time we arrived home from dream world it was get inside, get changed and go again as we went out for dinner and to the movies to see TAG.
Really you must go see that movie, its hysterical.
So we spent the day yesterday at dream world/white water world.
Was disappointed to say the least.
Alot of the rides were closed down for maintenance, 2 rides broke down while we were there and the water park felt dirty.
Definitely needs a revamp.
Today my chronic fatigue was in full steam, I couldnt move.
I slept most of the day on the couch sleeping, while makayla took the girls shopping.
So not really much to report.
I'm not sure if he is reading this but it's been a long time since Paiges dad and I have seen things on the same wave length, but during this process we have been able to be a United front for Paiges sake.
Unfortunately he wasnt able to join us on this holiday due to personal reasons but he has helped me be able to give these girls an amazing time and Dave if you do see this I really want to just say thank you :) And finally Craig, you have kept the forte running at home.
You were there for Brooke on her 18th while i couldnt be there.
You have done work drop offs and pick ups, fed my furbabies and made sure everything is running smoothly and I am so so thankful to have you in my life ❤
#scoliosis #sickkidsofinstagram #hemivertabrae #mummyblogger #love #paigesjourney #paigesjourney2018 #love #scoliosissurgery #bentnotbroken #family #bestfriends #like4likes
What an awesome day we had today, weather was 100% on our side and off to Movie world we went.
AND MAY I ADD the scooter I hired was shared by EVERYONE haha
I have photo evidence of this as well 😁😂 We arrived around 11.30 after discovering they had an after night event on tonight so didnt wanna get there to early and be buggered by the time the evenings events started.
First off the ranks was Jemma and April on the Batman ride (Photos below) both seemed to enjoy that and came away giggling.
Next was the DC roller coaster whhiicchhh miss jemma blacked out on 😟
But woke up still screaming and had missed half the ride haha
We then followed the path around and they didn't miss a ride.
All rides had a sign " If you are suffering with any back related health problems we warn you to not go on this ride".
Paige enjoyed every ride there haha
I wanted to wrap her in cotton wool, but the purpose of this trip is for Paige, I'm not getting in that girls way ❤
Again I need to thank Melissa Smith who made all of this possible, from high school friends to life time friends.
#scoliosis #mummyblogger #scoliosissurgery #love #jamescharles #sickkidsofinstagram #scoliosiswarrior #healthy #spinal #hemivertabrae #paigesjourney2018 #movieworld #family #bestfriends #sisters