#ileostomylife

6,292 posts

Si quieren ver un video de como cambio mi ileostomia, viviendo con ella, entre otras cosas déjenme Sus comentarios abajo!!! besos!!! #ileostomy #ileostomia #ileostomybag #ileostomylife
My samples from @coloplast can’t wait to try these to see if I get on with these better than the bags I’m currently using. I’m sorry I can’t remember the girls name I spoke to on the phone but she was absolutely amazing had so much patience whilst I tried to explain everything and sometimes answered with ‘I dunno.’ Or ‘do know what I mean?’ As well as ‘oh I’m not sure.’ She called the Stoma team to let them know I would be trying the samples and called back within 20mins to let me that that the samples would be sent out that day. As well as saying that she would also be sending me some some skin cleanser wipes to try and help my skin as currently my skin gets irritated, sore and quite painful when I’m changing my bag. Thank you again guys!! I had the pleasure of speaking to your company twice on the phone and come away happier then when I called. #ileostomy #stoma #colectomy #ibd #ibdawareness #crohnsandcolitis #crohnscolitis #ileostomybag #ileostomylife #coloplast #samples #thankyou #instagram #instadaily #thursdaypictures
Would love to stop hacking what’s left of my guts up sometime soon. When will this damn cough go away?! Sick of it at this point! Playing some Dragon Age 2 to pass some time before I eventually tire myself enough to sleep. I’m exhausted but my brain is like “NO SLEEP FOR YOU” and then when I do sleep I have the curse of the ostomate in having to wake up a few times to empty my ostomy bag during the night. I like to stay positive as much as I can about my ostomy because it’s given me my life back, but sometimes it’s a right pain in the arse 😂 what even is it like to have a normal sleep? I can’t even remember. #ileostomy #ileostomylife #ileostomybag #myface #ostomy #ostomate #stoma #stomalife
For the extra bit of added security from detachment and leakage. All belts are handmade to suit YOU and your pouch of choice. Find our advert in the @iasupport journal this month. Available on prescription #ileostomy #ileostomyawareness #ileostomybag #ileostomylife #ileostomyissues #ileostomyfitness #ostomy #ostomist
I had the best couple of days with my daughter and my two little grandies and then stupid body ruined it by sending me to hospital for 11 days with Uncomfortable vomiting!!! Yay!! Not!!! Didn’t get to goodbye but thank God for FaceTime!! I have the worst veins as all us edsers do!! 15 iv lines in 11 days. Literally 5 mins before I was about to leave together hospital I had a shot of ondansatron via iv. It’s definitely a very unpleasant experience. The nurse didn’t test the iv to see if it was working but went straight in with the ondansatron and blew the vein and then fill my hand with saline!!! Not a pleasant goodbye at all! I told the whole time she was pushing the syringe that something was wrong but she was....no no it’s ok. Seriously not the way I intended on leaving! #ileostomy #stoma #ostomy #ostomate #chronicillness #chronicpain #ostomybag #ostomylife #ostomyawareness #ileostomybag #ileostomylife #gastroparesis #gastroparesisawareness #gastroparesis #overit #nevergiveup #staystrong #stillstanding #faith #hope #believeinyourself #family #loveyourself #imtired #eds #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #ehlersdanlossociety
Ostomy bag covers £5 each Customised bag covers £13 Custom prints vary price To order send me a message All I need to know is your bag size and what you want Any custom orders or requests again just send me a message All fully lined Free UK shipping Worldwide shipping £4 Payment taken through paypal (link in bio) If you dont have paypal payment can be taken through direct transfer Happy shopping 😊 ~ ~ ~ ~ ~ #crohnsdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #crohns #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
We want to celebrate 500 followers by giving away two more travel bags! This time we are running two separate entries, to increase your chances to win. You can enter one or both! Here is what you need to do: ... Entry No.1 1. Follow @coloplast.ca 2. Like this post 3. Tag 2 friends in the comments below ... Entry No.2 1. Repost this picture and these rules 2. Include hashtag #coloplastcanada ... Enter before 11:59pm EST Friday, August 23rd, 2019 for your chances to win. 2 winners will be chosen at random and notified via direct messages. ... Rules/Disclaimer: This contest is open to Canadian residents that have reached the age of majority in their province or territory of residence, excluding residents of Quebec. By following, "liking", and commenting, you enter and agree that this contest is in no way associated with, administered by, or endorsed by Instagram. ... #chronicillness #invisibleillness #ibd #uc #crohns #crohnsdisease #ulcerativecolitis #colitis #ostomy #ileostomy #ibdawareness #crohnie #crohnsfighter #crohnslife #ibdwarrior #crohnsandcolitis #nocolonstillrollin #ostomate #ostomyawareness #ostomybag #ostomylife #getyourbellyout #ittakesguts #crohnsgirl #ileostomybag #stomabag #ibdlife #ileostomylife
Las Vegas Nevada. Our third visit to this mind blowing magical place. Our first visit was in 2002 when we got married in the Little White Chapel. 7 months before this I was given yet another chance at life & had my ileostomy done & so married the woman of my dreams. 😀 Everything is massive in Vegas, from our huge room in the Bellagio to even the public toilets, which you will be pleased to know are everywhere, probably so your not away from the tables for long 🤔 but the only thing I couldn’t get my head around is the massive gaps in the cubicles & when I say massive some were maybe 2inches wide so anyone can view what your up to. Maybe it’s just an American thing lol. Americans please feel free to educate me 😀 Our ride on the Vegas Strip zip wire was going great, I was given a tight fitting harness & suit, no probs, then waiting happily in the queue, still no probs only for a problem ahead of us with a customer who delayed the queue by 30 minutes and oohhh I started to sweat as had drank a few beers and had a Wahlburg burger & the thought of having a burst mid flight over all those on the strip might have been funny & gone viral online but doing the walk of shame was not filling me with delight 😂 All went great no showers of 💩 to report & we went straight to the casino & drank lots of whisky & actually won the cost of our trip playing a game called craps, not having a clue what we were doing just fell lucky, so all in all what a fabulous visit 😀. My wife’s favourite City especially after getting the courage this time to spend a day shooting machine guns, AK47’s & magnums & looking forward to visiting this crazy place again & it really is the place never sleeps 😀🎉 Happy travelling all #instatravel #lasvegas
WHEN IS SURGERY FOR INFLAMMATORY BOWEL DISEASE NECESSARY? - Sometimes drug and/or nutritional therapies fail to control the inflammation and you may continue to experience symptoms such as diarrhoea, pain, poor appetite and weight loss. Your doctor may then recommend surgery to remove any damaged sections of intestine. - The inflammation from Crohn’s may cause scarring which can lead to a stricture, especially in the small intestine. This can make it difficult for food or waste matter to pass through and may cause a blockage. - Symptoms of a stricture include cramping pains, distension or bloating, and, if there is a serious blockage, nausea, vomiting and constipation. You may need surgery to overcome the narrowing or blockage before treatment can continue. - Sometimes the inflammation spreads through the bowel wall and forms an abscess, a collection of pus, which can cause pain, fever and a general sense of feeling unwell. As the abscess develops it may ‘hollow out’ a chamber or hole. - This can become a fistula - a channel or passageway linking the bowel to another loop of bowel, another organ such as the bladder or vagina, or the outside skin. About one in four people with Crohn’s develop fistulas. While symptoms can be very distressing, surgery can be used to treat both abscesses and fistulas. - Poor absorption of nutrients combined with steroid treatment can lead to delayed growth in children with Crohn’s Disease. While this is most likely to be managed with nutritional treatment and drug therapy, it can also be helpful to remove any severely damaged sections of the intestine. - Crohn’s Disease is not a form of cancer. However, if a person has had severe Crohn’s Disease affecting all or most of the colon for at least 8-10 years, there is a slightly increased risk of bowel cancer. - For more information see: https://www.crohnsandcolitis.org.uk/about-inflammatory-bowel-disease/publications/surgery-for-crohns-disease - - - - - #thegrumblinggut #crohnsdisease #ulcerativecolitis __________________ Instagram: @thegrumblinggut Facebook.com/thegrumblinggut Twitter.com/thegrumblinggut YouTube.com/thegrumblinggut www.thegrumblinggut.com
While I was home visiting my family + friends, I was constantly being told “you look so healthy, your smile says it all”. 😭😍 Seriously, the best compliment I could ever ever receive!!! Not only do I feel healthier and happier but others around me can tell that I have found ‘me’ again after everything I struggled with. 🌻✨ Life is a beautiful thing. Thanks to hubby @jason3deveau for always wanting to take my 📸. • • • • • • •#yarmouth #explorens #novascotia #livingmybestlife #blessedlife #grateful #crohnsdisease #crohnswarrior #crohnsfighter #crohnsawareness #ibdwarrior #ibdawareness #ostomylife #ostomybag #ileostomyawareness #ileostomylife #baglife #baglady
My best friend's wedding is a highlight of my life. We have been best friends since I was 15 years old. Ellis you are my dearest friend. #wedding #ileostomy #ileostomybag #ileostomylife #bestfriends
This journey has been long, hard, tear-filled, joke filled, and eye opening. On February 26th, 2019, I had my first ever surgery which was a major surgery. I got an ileostemy bag, I removed my colon and became Ulcerative Colitis free. My family was a big help psychically, mentally, and emotionally. They helped me when I was in pain and felt weak. They helped me when I felt so low. They are my rock and my home. I love them with my all. I had my second surgery June 10th and this last one Friday, August 16th. Thank you to my family for being there and supporting me. To my friends, thank you for understanding and caring. To everyone who prayed and kept me in your thoughts, thank you. Thank you to all the staff and volunteers at Phoenix Children’s Hospital. I’m now feeling way better, looking way better, acting way better, overall better. All that’s left is getting this incision healed and scars healed. This will forever be a stage in my life that I will never forget. 💩🥳❤️🦄 #ucfree #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisfree #pch #phoenixchildrenshospital #ileostomylife #ileostomysurgery
“I have had my ileostomy for 7 months now and it has saved my life. My only problem was leaving a very bad smell all the time after emptying. Someone mentioned Na'Scent to me for this problem and I haven't looked back! This is THE BEST product that actually works! It has changed my life as I now don't mind going to visit people and staying for a while and I don't worry about using their bathroom and leaving a bad smell!” -- Susan L, Customer . . . . . . #ostomylife #nocolonstillrollin #girlswithguts #urostomy #chronicillness #ulcerativecolitis #crohnswarrior #ileostomywarrior #instacrohns #colostomia #stomafashion #ileostomia #ileostomylife #urostomia #breakingthestigma #crohnslife #bhfyp
Ostomy bag covers £5 each Customised bag covers £13 Custom prints vary price To order send me a message All I need to know is your bag size and what you want Any custom orders or requests again just send me a message All fully lined Free UK shipping Worldwide shipping £4 Payment taken through paypal (link in bio) If you dont have paypal payment can be taken through direct transfer Happy shopping 😊 ~ ~ ~ ~ ~ #crohnsdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #crohns #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Fun little afternoon out with Adam today taking photos of some cute farm animals. 🥰 Love the highland cattle. And got to hold the sweetest little chick. #farm #hallhillfarm #highlandcattle #highlandcow #pinkpurplehair #hellbunny #ostomyfashion #ostomate #ileostomylife
When your ileostomy is noisy in a quiet waiting room. Hush Phyllis, you don’t need to introduce yourself to everybody 😂🤪🤣😂🤪🤣 #ileostomylife #ileostomybag
When the first thing your husband does when you come downstairs is call you a ninja turtle, you know it’s going to be a good Monday. . . . . . #ileostomy #ileostomybag #ileostomylife #ostomy #ostomybag #ostomylife #stoma #crohns #crohnsdisease #crohnswarrior #ulcerativecolitis #ibd #ibdawareness #chronicillness #ibdwarrior #bodyconfidence #bodypositive #confident #girlpower #dogsofinstagram
It's all shits and giggles until the bean sprout from lunch gets stuck! I'm not good at avoiding "danger" foods. The only thing I always try to avoid is mushrooms... But apparently yesterday's naughty vegetable spring rolls and today's bean sprouts and nut bar were a little too much for my little raspberry! Any tips from one non-chewer to another? . . . . . . . #stoma #stomaproud #nocolonstillrollin #getyourbellyout #stomascars #stomabag #mentalhealth #ostomy #ostomyawareness #ostomate #ostomybag #ileostomy #ileostomyawareness #ileostomybag #ileostomylife #ileostomate #stomablockage #ostomyblockage #stomahacks #stomatips
You are beautiful ❤️ #ileostomy #ileostomylife #ileostomybag
Ostomy awareness in Central Oregon complete ☑️ I have been too sick the past five years to enjoy spending time anywhere that didn’t have a bathroom within running distance 🏃‍♂️🏃‍♂️🏃‍♂️. My ostomy allows me travel, hike (sort of, need to work on gaining endurance), and enjoy nature! I believe by next year Alec and I will be healthy enough to gain some distance on the awesome hiking trails in the high desert. So over being stuck dying in the bathroom not enjoying Oregon’s beauty. Thank you ostomy! Oregon outdoors, I’ve missed you ❤️ #ulcerativecolitis #crohnsdisease #ostomy #ileostomy #ileostomylife #ostomybag #ostomyawareness #ostomylife #inflammatoryboweldisease #ibdawareness #fuckcrohns #chronicillness #proctocolectomy #ileostomywontstopme #panproctocolectomy #ommp
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